Hope for Life

The silence here at night is deafening. Once in awhile a child screams out in pain and I am numb to it. There was a time I would have cringed at that sound, my heart would have ached for them. Not now. Now I think 'thank god that child has the strength to scream, the energy is there, they are alive.' Alive...not well, but alive. I took too much for granted, now I need hope for life. Stay strong little man...you are my hero.

Thursday, August 18, 2011

6 days home.........

and then airlifted once again, the worry was he was developing pancreatitis again but the bloodwork numbers were just a bit off for that. I lay awake one night with a hunch and rolled it past Krystal the next morning and she thought it was a great idea but the docs originally blew it off,thinking that couldn't be it.

When we took him for bloodwork on Tuesday, he was upset the entire time he was accessed, absolutely not normal but it had taken two tries and he was calm as soon as it was over so we blew it off. When we took him to 100 Mile Hospital they again had to try twice to access him and he was inconsolable. He broke a fever, very dangerous to him and of course the call was made, thinking it was pancreatitis. When Krystal can't console him, something is seriously wrong, he is generally a very happy baby, despite his struggles.

As it turns out, he does have a line infection in the VAD which is at least treatable, and hopefully not with a new surgery to put in a new one but only with antibiotics. He is not in as much pain already with broad spectrum antibiotics started in 100 Mile House. The treatment takes time, 10 days with meds in the line, a 2 day break and retesting. If it's longer, I may tag team with Krystal so she can come home and get Kazzdon ready for school and his birthday.

The leftover mystery with his trip is why were his lipates up and nothing else and why were they up? Insert big green question mark here.....

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