Hope for Life

The silence here at night is deafening. Once in awhile a child screams out in pain and I am numb to it. There was a time I would have cringed at that sound, my heart would have ached for them. Not now. Now I think 'thank god that child has the strength to scream, the energy is there, they are alive.' Alive...not well, but alive. I took too much for granted, now I need hope for life. Stay strong little man...you are my hero.

Monday, August 5, 2013

YAY!

We are pleased as punch to announce that Stephanie Roung of MitoCanada has made it to the top 8! Confirmation emails were in on Friday, Krystal got hers too, and Canuck Place will receive a $10,000.00 donation!!. The two moms get to meet each other! It's very exciting. *insert a million smiley faces here* We have known about Stephanie since Ayzac got his first preliminary diagnosis and they helped spread awareness in our small town when a fundraiser was held here, by sending us brochures to hand out. We knew very little back then about the disease and MitoCanada was very receptive and quick to help with what they could! Since then, we made our own little brochures and keep them on hand for when people say "What is Mitochondrial disorder/disease?"

Good Luck Stephanie! In our eyes you are Top Mom!

Friday, August 2, 2013

*Whew*

Gotta say, glad the voting is over for mom of the year. It was exciting, tense and touching! We had a great little campaign team, making calls, getting the word out, posting, sharing and we even installed a promo on our personal vehicles that I made with donated vinyl (Thanks Heritage Signs)! A HUGE THANK YOU to everyone who voted, shared and felt inspired. the Wolf, the Rush, 100 Mile Free Press, Peace Arch News, Sonic Nation and all of the local 100 Mile Stores who put up little posters and encouraged voting! Ayzac has always had a special place in their hearts since he was born here. Our hometown Medicine Hat got on board even though they were going through their terrible flood and had better things to do than worry about voting, CHAT and my96, THANKS! Yours By Design Drywall, thanks it's customers who voted to get their houses done! (kidding) A special shout out to our SW!!!! If I missed anyone, I am sorry, give me a comment and I will rectify!

 Krystal doesn't think she's anyone special, doing anything any mom wouldn't do and a lot of people seemed to think different, which is why I nominated her in the first place (not just me though, another person did too, and we worked together on it but only one can be named and that person asked to be anonymous).

Krystal took the opportunity given to further spread the word about Mito and rare diseases, especially when she was invited to be on Breakfast Television Vancouver and JoyTV. They tracked her down through that beautiful article written in the Peace Arch News/Surrey Leader.  Leah, the videographer for Joy TV thought ahead and did two endings. One for the voting round and one IF Krystal would go on to the finals, which she has, since she had almost 10,000 votes when the voting closed although it will be nice to when it's confirmed in the official email, expected around the 6th of this month. 10,000 votes is a whole lotta LOVE and awareness! We were surprised at how many people had heard of Canuck Place but had no idea what they did! They do now!! If you have to be in the position Krystal is, there is no better place to have than a Children's Hospice who cares for your little one AND you. It's the best charity you hope you never need but if you do, you are glad it's there for you to help you through. If you want to get involved, Canuck Place has fund raising events all year long that you can help with, just visit their site: here

Best of luck to the remaining moms, you are all so incredible, your stories touched us so much! A special shout out to the other mitomom who also made the finals Stephanie Roung, who has made leaps and bounds with her charity, Mito Canada. we couldn't help but point some energy in her direction during the campaign. She is a hero of Krystal's and it would be MOST awesome if BOTH were in the final 8 as they are wanting to meet each other! Right now, the judges have the difficult task of choosing 2-7 for the final 8.

-Lorna